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Senior Director, Head of Global Patient Affairs

Cambridge, MA

Posted: 01/30/2019 Job Category: Clinical: Medical Affairs Job Number: 2268

Our client is seeking an exceptional candidate to develop and lead a patient advocacy team within the corporate affairs functions. Reporting to the Vice President of Corporate Affairs and managing a team of advocacy professionals, the Head of Global Patient Advocacy will oversee partnership and engagement strategy with global patient advocacy groups across the company’ s portfolio, patient and carer insight gathering and analysis to inform clinical and program strategy, patient preferences and data that assist in value demonstration, and patient education and engagement programs. In addition, the candidate will help to establish company leadership within the broader oncology and rare disease patient advocacy communities, and champion the patient perspective within the company. The right candidate will have strong leadership skills, be an excellent communicator with an ability to develop meaningful relationships, a strategic thinker who can bridge the complexities of patient care and drug development and access, a seasoned collaborator who can successfully lead and influence external and internal stakeholders, and a highly motivated self-starter who is comfortable innovating in an entrepreneurial and fast-paced start-up company environment.

Job Responsibilities:
  • As a functional leader, help define client’ s vision and mission for patient advocacy, and build strategy that reflects the company’ s commitment to patient, carer, and advocate engagement
  • Build an infrastructure that ensures advocacy strategy and programs advances the interests it shares with advocates along the development and commercialization continuum
  • Champion the patient perspective and deliver strategic insights to senior executive, clinical development/operations, medical affairs, HEOR, commercial leaders, as well as program teams, to optimize corporate and program strategy
  • Foster a patient-centric culture driven by our core value “ patients first”, directly connecting employees to the patient and carer experience through distinct and innovative corporate programs and activities
  • Oversee development and implementation of strategic plans for engaging [global] patient communities across client’ s portfolio, with an emphasis on clinical-stage programs
  • Oversee engagement at patient meetings across the portfolio, ensuring activities demonstrate client’ s commitment to disease communities and drive strategic program goals
  • Be the key relationship manager for [global] patient advocacy groups; oversee regular communications by the advocacy team and ensure other cross-functional alignment; assess and mitigate potential risks
  • Identify, initiate and oversee strategic patient advocacy programs and partnerships related to disease awareness and education, diagnosis, access to appropriate care, adherence, and policy
  • Drive clinical trial design, awareness and patient identification initiatives across the portfolio to support rapid trial enrollment and execution
  • Lead or contribute to the development of patient-facing educational materials across the portfolio
  • Partner effectively with medical affairs and clinical to ensure patient inquiries about our programs, including clinical trials and pre-approval drug access, are rapidly and consistently addressed with compliant information
  • Partner effectively with legal, regulatory, clinical, medical affairs and finance to optimize a strategic and compliant sponsorship, grants and charitable contribution review process
  • Manage a team of two advocacy professionals, including their professional development, and contribute to corporate affairs workforce management and planning
  • Create and ensure adherence to legal and compliance frameworks that ensure the company’ s relationships with advocacy stakeholders are respectful and appropriate 
  • Routinely interact and build trusted relationships with executive leadership, EU/international leadership, commercial, medical affairs, clinical, research, legal, and regulatory
  • Oversee the advocacy budget, identify and supervise management of external strategic partners
  • Reinforce company’ s leadership role within industry via external involvement; board membership, committee, speaking engagements

Requirements / Qualifications:
  • Bachelor’ s degree required; advanced degree preferred (e.g., MS, RN, PhD, or MD)
  • Minimum 10 years of relevant patient advocacy, communications or consumer marketing experience in the biopharmaceutical industry; overall 15+ years of relevant industry or non-profit experience
  • Proven understanding of the needs of individuals living with cancer and rare diseases as well as pressing public health issues, including patients and care providers
  • Knowledge of the biopharmaceutical industry, with an understanding of regulatory bodies that impact communications and reimbursement
  • Understanding of guidelines and best practices for developing and executing patient outreach programs and patient events in the US and Europe
  • High degree of professionalism, maturity, executive presence, business understanding and confidentiality
  • Strong written and verbal communication skills as well as strong interpersonal skills, with impeccable attention to detail
  • Strong leadership skills with a proven ability to collaborate effectively with internal and external stakeholders at all levels and influence decision-making without authority
  • Highly motivated individual with the flexibility and creativity to excel in a rapidly growing and changing environment; confidence and organizational skills to independently work on multiple tasks
  • Must be willing and able to travel (approximately 30%) and regularly meet with patient advocacy organizations in the U.S. and internationally

Julie Monti
Clinical Recruiter

Julie brings nearly 20 years of experience to her role as Clinical Recruiter for The Steely Group. Throughout her career, she has built lasting relationships and strong partnerships while helping companies build successful teams. Julie is known for her sharp wit, easy smile, sense of humor and genuine interest in people.

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