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Director, Patient Advocacy


Post Date: 08/13/2018 Job ID: 2062 Job Category: Clinical: Medical Affairs

Our client is seeking a Director, Patient Advocacy. Reporting to the Vice President of Corporate Affairs, the Director of Patient Advocacy will drive engagement with patient advocacy groups across the company’ s portfolio, gather patient insights to inform our clinical development programs, develop and implement strategic programs and partnerships, and champion the patient perspective within the company. The right candidate will be an excellent communicator with an ability to develop meaningful relationships, a strategic thinker that can bridge the complexities of patient care and drug development, a seasoned collaborator who can successfully lead and influence external and internal stakeholders, and a highly motivated self-starter who is comfortable innovating in an entrepreneurial and fast-paced start-up company environment.

  • Champion the patient perspective and provide strategic insights to internal teams to foster understanding; bring to life the core value “ patients first” by directly connecting employees to the patient experience
  • Contribute to the company’ s evolving philosophy and long-term vision for patient engagement
  • Develop strategic plans for engaging global patient communities across the company portfolio, with an emphasis on clinical-stage programs
  • Represent the company and its programs at meetings and other interactions with patient advocacy groups and disease communities
  • Serve as a key relationship manager for global patient advocacy groups and manage regular communications to ensure productive partnerships
  • Identify, initiate and oversee strategic patient advocacy programs and partnerships related to disease awareness and education, diagnosis, access to appropriate care, and policy advocacy, in collaboration with a cross-functional team –
  • Support clinical trial awareness and patient identification initiatives across the portfolio to support rapid trial enrollment and execution
  • Lead or contribute to the development of patient-facing educational materials across the organization
  • Partner with medical affairs and clinical to ensure patient inquiries about our programs are rapidly and consistently addressed with accurate and compliant information
  • Oversee handling of requests and manage budget for patient advocacy group sponsorships, grants and charitable contributions
  • Partner effectively with critical cross-functional partners including commercial, medical affairs, clinical, research, legal, and regulatory; provide leadership to external partners and manage specific vendor projects

  • Bachelor’ s degree required; advanced degree preferred (e.g., MS, RN, PhD, or MD)
  • Minimum 5 years of direct patient advocacy experience in the biopharmaceutical industry; overall 10 years of relevant industry or non-profit experience
  • Experience in oncology and/or rare diseases
  • Strong understanding of patient care models, drug development and regulatory processes, and commercialization of therapeutics
  • Exceptional communicator skilled at relationship building and expressing empathy for patients and families in need; highly perceptive, socially intelligent, and intuitive
  • Strong leadership skills with a proven ability to collaborate effectively with internal and external stakeholders at all levels and influence decision-making without authority
  • Highly motivated individual with the flexibility and creativity to excel in a rapidly growing and changing environment; confidence and organizational skills to independently work on multiple tasks
  • Must be willing and able to travel (approximately 30%) and regularly meet with patient advocacy organizations in the U.S. and internationally


Kelly Rubach
Senior Clinical Recruiter

Kelly brings great energy and enthusiasm to her work as a Senior Clinical Recruiter for The Steely Group. She loves a challenge, thrives on problem solving, and is at her very best when she's uber busy. Kelly is tenacious; she believes there is one right person for every opportunity and will work tirelessly to ensure a perfect fit for every candidate and client.
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