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Associate Director, Patient Advocacy

Cambridge, MA 02142

Posted: 06/05/2019 Employment Type: Direct Hire Job Category: Clinical: Medical Affairs Job Number: 2144

The Sr. Manager, Patient Advocacy creates and maintains strong relationships with the patient community and patient advocacy groups to enhance the individualized approach to patient care that defines company commitment to patient communities. This position reports to the Sr. Director, Patient Advocacy to lead collaborations with patient advocacy groups in various rare disease communities, represent the patient perspective as an active participant of cross functional working teams, and develop innovative solutions and programs to meet the dynamic needs of the patient communities.

  • Providing strategic insight on the pulse of the patient populations and ensuring strong collaborations with patient advocacy groups.
  • Engaging the Advocacy Community for feedback regarding critical decisions that will impact the community
  • Building relationships and providing guidance to existing and/or evolving patient associations.
  • Identification and coordination of patient presentations to internal meetings.
  • Articulate the themes of the overall patient community to your internal colleagues at any given point in time.
  • Successfully work with external patient organizations to help them grow and develop into high functioning, sustainable organizations
  • Staying current with relevant information and resources regarding industry and health care legislation.
  • Providing updates regularly to the disease communities, especially as related to clinical trial and pipeline evolution.
  • Helping to form relationships globally
  • Oversee development and management of community facing educational presentations and newsletter materials
  • Ensures that all employees have an opportunity to learn about the patient perspective and company commitment to the communities they serve.
  • Works compliantly in interactions with patient advocates, patients, families and caregivers per internal and external guidelines.

  • Bachelor’ s degree in science, social science or related field
  • Minimum of 3 years patient advocacy experience, with 8+ years of progressive experience in a healthcare / biopharma setting
  • Work in rare disease field preferred
  • Familiarity with clinical and drug development process
  • Excellent interpersonal, oral and written communication skills including strong presentation skills
  • Ability to relate with a diverse group of individuals and develop rapport quickly
  • Ability to influence in a proactive, objective and diplomatic manner within all levels of the company and outside community leaders
  • Work collaboratively, independently and with a sense of urgency
  • Demonstrated ability to work under pressure and manage multiple responsibilities
  • Ability to use both strategic and tactical approaches to problem-solving and multi-tasking
  • Able to create a positive work environment for team to help retain and develop staff
  • Proficient in basic computer skills and Microsoft Word systems
  • Travel may be significant at times, and is largely shaped by community need. Expect 25-40% travel with weekend involvement.

Aaron Goldman
Clinical Recruitment Team Lead

Aaron is a spirited guy who likes to make things happen. He has been a Clinical Recruiter for the past five years, and says his greatest reward comes when a candidate accepts an offer and he hears the excitement in their voice - You know you have helped someone change their life!
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